Knowledge Today.
Hope Tomorrow.

The Danon Foundation is a trusted resource for people affected by Danon Disease to find and share knowledge and to build community.

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Our Mission

The Danon Foundation boldly empowers people living with Danon Disease, providing trusted information, resources and support to help navigate life, from diagnosis to treatment.

We enable the best care possible by supporting education, increasing awareness, and building a community of patients, family members, caregivers, physicians, scientists, friends and partners.

Our Mission

The Danon Foundation boldly empowers people living with Danon Disease, providing trusted information, resources and support to help navigate life, from diagnosis to treatment.

We enable the best care possible by supporting education, increasing awareness, and building a community of patients, family members, caregivers, physicians, scientists, friends and partners.

Our Vision

To redefine life with Danon Disease through knowledge, discoveries, and courage.

Our Focus

Elevate Danon Disease in the medical community in order to advocate for the best possible care

Providing trusted and centralized information and resources

Supporting the Danon Disease community

Our Mission

The Danon Foundation boldly empowers people living with Danon Disease, providing trusted information, resources and support to help navigate life, from diagnosis to treatment.

We enable the best care possible by supporting education, increasing awareness, and building a community of patients, family members, caregivers, physicians, scientists, friends and partners.

Our Vision

To redefine life with Danon Disease through knowledge, discoveries, and courage.

Our Focus

Elevate Danon Disease in the medical community in order to advocate for the best possible care

Providing trusted and centralized information and resources

Supporting the Danon Disease community

Our Vision

To redefine life with Danon Disease through knowledge, discoveries, and courage.

Our Focus

Elevate Danon Disease in the medical community in order to advocate for the best possible care

Providing trusted and centralized information and resources

Supporting the Danon Disease community

What is
Danon Disease?

Danon Disease is a rare, genetic condition resulting from a genetic mutation or deletion on the X chromosome. It is a type of lysosomal storage disorder that causes the build-up of toxic materials in the body's cells, which can cause health issues with the heart, muscles and brain cells.

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"Our normal is different than someone else’s normal"

Kim Marincik
Danon patient and advocate

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